Friday, March 23, 2007

Springtime at CHOP

It is almost the weekend and that means day-pass and shopping. Meanwhile, here is a special update to Sarah's Team:

***

Today is March 20, 2007, approximately 4 months since my daughter's accident. Sarah continues to exhibit great stamina, tremendous spirit, and each day she makes progress with her therapy. She now utilizes a walker for short distances and her balance is improving, (AWESOME); her fine motor skills with there accompanying functions continue to improve and her speech is clearer with more emotion & intonation (FANTASTIC)!

Thank you all for you prayers. Many good and positive things are happening to Sarah at this time, however, she is still in need of your prayers. Her road to recovery is long. Sarah has some blurriness with her vision, but this has decreased and she has another neuro-opthalmology appointment at the end of the month. So, please continue to pray for a speedy, complete recovery for Sarah.

With my appreciation and love,

Sarah's Mom, Brigid

Thursday, March 15, 2007

Nothing like A Road Trip!

To Sarah's Team:

Hello - it has been a busy couple of week's for our Sarah - she is getting the job done at CHOP and now starting to reap some rewards. Now she can get a day pass on weekends to leave CHOP for awhile. On Saturday the 3rd, Sarah got her first day pass from the hospital and her Mom, Dad, some cousins and family friends took her for a tour of the Univ of Penn campus. Brigid thinks Sarah will someday enjoy the Museum of Anthropology @ Penn, and the King Tut exhibit at the Franklin Institute, but on her first day out Sarah was content to go to Starbuck's, the U of P bookstore, The Gap, and Aunt Annie's pretzels. It just got too late for the cultural stuff - drat - but Sarah didn't seem to mind.

Then on this past weekend, her Aunt Sally and cousin Mary got the bright idea to throw a party for Sarah. Lots of her cousins, aunts, and uncles, as well as some local friends visited Sarah over the weekend down at CHOP, and then the next day we partied at our house. The two co-conspirators from back home (Sal and Mary) thought it would be cool to bring to Sarah a couple of her favorite things from W-B: Angelo's pizza and Pal, her faithful dog. So after her cousins saw her at CHOP on Saturday, we picked her up at noon on Sunday, just beating the St. Patrick's day parade traffic and headed out of town toward Valley Forge for the party. We had lots of great pizza, soda, ice cream, and all kinds of treats and Sarah played cards with her cousins and got to see Pal. We are still gathering up the confetti, balloons, and streamers here- it was a great time and Sarah had a blast. I think she wants to go to the King of Prussia Mall on her next pass. You can't get the "go" out of Sarah, just say the word and she is ready to roll. What an inspiration, she is moving forward every day. Go Sarah!

Until the next road trip…Uncle John.

Saturday, March 3, 2007

New Wheels and New Mobility

Sarah's Team:

Among her legion of supporters, many of the good folks at Geisinger who cared for Sarah are able to stay in touch, and like all of Sarah's family and friends, they are delighted to learn of her continued progress.

This week, our irrepressible Sarah continues to amaze us as she buzzes through her routine at CHOP. Check out this list:

* New wheels and new mobility - Sarah must do more of the work in her new chair, but she can get around better on her own.

* Hold the parents, take a break mom. It was time for an outside trip down the street to Starbucks's last week - with the gang at CHOP. The cappucino was fine.

* Did someone say movie? Down to the atrium. RV is worth a second watch.
* CHOP is a big place but not to our intrepid teen. McDonald's, the cafeteria, trips to the day room, visiting friends - no big deal for Sarah, the girl is getting around.

* More swimming therapy may be in the program, Sarah really enjoys the pool and is showing good endurance and spirit in all her PT.

* Lots of work throughout the day, but Sarah joined an after school art program to do more creative work and hang out with other kids.

In general, her stamina is excellent, she continues to progress, and while she is coping with the whole experience, Sarah continues to exhibit her tremendous spirit. Her road is still long, and like the one less traveled from a favorite poem, Sarah is making all the difference.

Regards, UJ (Feb 27)

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